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Category Archives: Readers Contributions

Malassezia: A Handful of Precious Gems

                                     

                      * Malassezia ~ Readers’ Contributions *

                                                       *

                              “A Handful of Precious Gems”

                 Malassezia-H of G-MD           

                                           ‘Thank Yous’

         are not in the Foremost of Readers minds when contacting me.

                           The majority of emails have more of 

           an Ambulance  Ambulance 2or Crisis kind of urgency,

                    concentrating on dealing with puzzling

                  frustrating and hard to resolve problems.

.

It takes a lot of courage to confide to a complete stranger

details of an affliction so private, confusing, wearisome

hard to identify, and without -or if- very little Medical help

and especially after a dismissive, Intimidating diagnosis 

           of ‘Nerves’, or ‘Delusional Parasitosis’.

    .

  So the handful of few and far in between received

  have been like a Handful of Precious Gems to me.

                                 Thank You-Sonata - MD

        I am Deeply Grateful for Your Support and Appreciation

             It has kept me persevering during times of doubt  

                                                  * * *

   Malassezia -ThankYous

To Whomever reads this…  

I have become ill & searched for answers on the internet…. 

During my search I was lucky to find this page Malassezia Daily 

of this unbelievable woman who also endures TB

& has an additional site in this same nature.

Unbelievable is her detailed links diaries, search for diagnoses,

self help medications & natural aids.

She shares outright her emotional pain & trauma that you can feel

thru the very soul of your body.  

I was lucky enough to receive personal email & we have been in contact

when both of us are strong at times.

Never met her it is my only dream.  She has kept me alive.  

Hoping she would write a book ….

… as this is one of those stories that shouldn’t go unknown

as she has helped many where others have provided no help at all!!  

… her websites say it all & much better than I could ever express.  

She is my heart & soul of survival …!!!

          * * *

Thank You-Sonata - MD

I knew I wasn’t crazy but have felt very alone with that knowledge until now.

I usually walk away with “depression and anxiety” as my diagnoses

after my ex-doctor visit. Now THAT makes me crazy!

I’ve been glued to your blog for the past 6 hours

as you explain all the strange phenomena crawling on my body! 

                Malassezia!

ThankYouThankYouThankYouThankYouThankYouThankYouThankYouThankYou!

Orange-peel skin; ‘demodex pores’ on my face; scalp that EXPLODES 

with grease and white sand every night around 9 or 10pm.

You explained them all!  From the bottom of my moldy heart, thank you.

   * * *

Thank You-Sonata - MD

Dear Sonata

Your blog URL was given to me by a kind person who emailed me through my website.

Your story is utterly amazing and I commend your courage, fortitude, and resolve

in dealing with it in the face of such medical ineptitude, ignorance, and arrogance.

You are a truly exceptional human being.

   * * *

Thank You-Sonata - MD

Useful info. Fortunate me I discovered your website accidentally,

and I’m shocked why this didn’t came about in advance! I bookmarked it. 

            *

Hi there! I read your blog on Malassezia Yeast

and would like to say a big thank you for taking the time to research into this area

I had two questions which I would appreciate your feedback on.

           *

Hi Sonata,Thank you for your wise words, and your encouragement.

           *

Hi, Ive been reading your blog and looking for answers to my hell

and think I may have found it – Thank you.

           *

Thank you so much for posting your (well-detailed) story. 

  * * *

Thank You-Sonata - MD

Helllo Sonata, I’ve been reading your M Yeast blog the past couple of days.

I’m so sorry for what you have gone thru.

Thank you so very much for your blog about it all.

I hope you realize how many people you must be helping.

I have a few questions if that is ok?

           *

Hi, Sonata……   It’s been hell, quite literally.

Your site and information from others saved our …

when the medical community failed.

           *

Hi Sonata, Thank you for sharing and pouring out your talents and experiences.

First of all, I think you are doing us all a great deed of good by your blog.

           *

Hello Sonata, I want to thank you for sharing your experiences

and I am sorry for all you have had to endure.

I wanted to let you know that you are not alone.

          *

Dear Sonatas, Greetings from the US.

Wanted to drop you an email of appreciation for sharing your story.

I have bookmarked the site

and will probably be finished reading it later tonight.

        *

Thank you sooooooo much for the response Sonata.

Thank You-Sonata - MD

 

  ========================================================

   Malassezia Daily ~ LIST OF ENTRIES 1–150 *   

  ========================================================

                         * Malassezia ~ Readers’ Contributions *                                                  

                 Malassezia Daily WP.

                                  To All Sonata Blog Visitors                                                    

  Although i am unable to engage in individual communications anymore

       due to the fragile state of my health and time and effort required

  Tired Bunny

    I am always happy and interested receiving emails with your stories

 experiences, suggestions, etc – and if suitable, to publish in part or whole

    in the ‘Readers Contributions’ in the * Malassezia Daily* section.

 Please State Clearly your Permission for your email to be Published 

           – Anonymously of course and without identifiable details –

otherwise they will be considered and treated as Private communications.

                                         *

                         *  Malassezia Blogs  *

                                           Malassezia Blog WP

                            Deals with history of Treatments 

                               Outcomes and Experiences 

                             from Beginning to Recent times  

                                  –>  * Malassezia Blog *  

                                                       *

                                              Malassezia Daily WP.

                    Confirming and/or Updating past Topics 

                                                  Adding

                       Recent Developments and Progress

                             New Discoveries and Photos 

                                                    And 

                  Addressing Readers’ Questions / Keywords

              Please Note:

                       I am NOT Qualified  To Make a Diagnosis

                             Nor Provide Personal Advice

                                All References are Based

                   On my Own Unfolding Personal Experiences

                                 –>  * Malassezia Daily *

   *  

      =================================================

                     Malassezia Topics B 

       *LIST OF ENTRIES BY CATEGORIES*

========================================================                   

    DC3 MD NEW              

 
Comments Off on Malassezia: A Handful of Precious Gems

Posted by on 31/10/2014 in A-ALL ENTRIES, H-MALASSEZIA YEAST, Readers Contributions

 

Tags: , , , ,

Malassezia~Readers’Contributions-Horse or Zebra?

                        * Malassezia ~ Readers’ Contributions *

                                                      *

                             * Malassezia ~ Horse or Zebra? *

                                                      *                              

                      Malassezia HS-MD

                                   ‘Your Father is … what?…’

                                               * 

                 I would like to express

    My Deep Gratitude to the Reader Below

a) For Trusting their Story with me, and

b) For Allowing Publishing it for the Benefit of Readers

    who have been or going through similar experiences

hoping  that for many  it will be Beneficial and Soothing.

                                    ~

  On Me, it had a profoundly Therapeutic, Cathartic effect 

on the emotional level and acted as a Catalyst, facilitating

the Liberation from feelings of frustration, anger and resentment

that were weighing heavily on my soul, finding difficult

to shake off before reaching my end and been concerned 

they would follow me to my grave – any day as things stand at this stage.

So now i can say I am  finally able to at least Forgive – if not Forget.

                                       ~

 And for many new to the experience and/or those intending

 to seek medical help may be helpful preparing them

 to what they may expect and how to deal with their situation

 knowing ahead some possible hurdles…

                                        * 

 I am only including selected sections with crucial details

     enough for the purpose of benefiting other People 

         while Respecting the Kind Reader’s Privacy.

                                         *

 

ID: JN104-52046PRS

Hi!
If it makes you feel any better, I have the exact same problem you do,
AND my father is a dermatologist.
So, just imagine the frustration when your own father tells you it’s stress…
and then he has the nerve to slip in a few weeks later
that he had a woman come in with delusional parisitosis.
It has practically ruined our relationship.  Mine started after years of antibiotics … …
………………….

….. few things I know to be true about this, and a couple of assumptions.

=  If I eat any sort of pastry or have anything yeasty, I will have an unbearable flare.
Donuts, cookies, cake, bread, and beer are all a guarantee
of a flare within a couple of hours to a couple of days. .*1  

=  The fresher/yeastier, the sooner I react.  I cannot eat anything from a bakery.
Sometimes I’ll get away with stale bread.**1

=  The Specific Carbohydrate diet is helpful.

=  Diflucan will stop it.  I’ve been prescribed a two month course
on three separate occasions, in which you’re on a pretty restricted carb diet,
and you have to get your liver enzymes checked.
I’ve had complete relief during the course, but after a couple of months,
it starts again, and it’s too dangerous to take long term.*2

=  Right now, I’m going with the leaky gut theory.
I’m trying to heal with L-glutamine, zinc, probiotics,
candibactin, inositol, nystatin, and fish oils.*3
I was doing okay until recently, after a course of antibiotics ….
I went right back to where I started.**3

=  There is lots of info on Seborrheic Dermatitis
—which is obviously just one part of the manifestation of this
—but I’ve found that if I approach it from that angle,
I’ll be more likely to get someone to listen to me.

=  This is one that I have seen a pattern, and I’m 90% it helps significantly,
but I have to test it completely on its own.
I take Sam-E  (S-Adenosyl methionine), and it takes the inflammation down very quickly.
The problem I have with it is that if I take too much, I get really edgy. *4
So, trying to balance that vs. controlling this is a fine line.  When I get it right, it’s fabulous.

= It’s SO INCREDIBLY FRUSTRATING!!!! .*5

                             *

      (Brief Comments)

 

* 1  Many other Readers over time have mentioned  
       that after having to give up  these groups of foods,
       experienced some improvements.      

**1  Perhaps an indication???

     a) that even the Bread yeast creates problems
     b) Baking does not necessarily kill it all.
     c) Yeast loves gluten!!! – Gluten Rich flours create better rising breads…

.*2  Other Readers have Confirmed the same regarding Reappearance
      of the Yeast after stopping treatment

.*3  Some of the Ingredients mentioned i have tried without any beneficial result
      some i believed promoted proliferation -in my case- and some
      i would not elect due to certain disagreeable -to me- indications
      but each Person and Body is Different in Condition and Processing of Elements,
      so my standpoint always is:

         If it helps ~ without eventual or long term harm ~ go for it!

**3  Yes, antibiotics seem to have a quick effect of unravelling
      any meticulous progress and mending…
      Many Readers have reported similar experiences.

.*4  This i had tried before i knew about Malassezia or its effect upon it
      but i only managed to go through less than half of the container
      because it drove me crazy!… Malassezia can do that on its own, lol!
      Certainly not suitable for either irritable or depression prone individuals
     – but again… what may be bad for one, might be good for another?…                                             
      

*5  I am sure i would not be the only one to totally Agree with this statement!

*

(My Reply)

Hello (Reader)

I found your email very Interesting and had to break my resolve
-of not entering into any further personal communications-
in order to Thank You for taking the Time to Relate your Story.

I understand how Frustrated you may feel with your …’Dermatologist!’
Don’t get me started about mine! Lol!

Perhaps you have a unique Better Chance than most of us,
instead of allowing this situation to ruin your Father-Daughter relationship
to use your influence instead, no matter how negligible
you might consider it in your frustration, to ‘Convert’ him to the Camp,
help him Open up to Reality and the indisputable Facts
that it is not all just nerves or delusions –except perhaps for only a few–
and See how Better he Could Help so Many Suffering People.

I can imagine though this might be harder than actually ‘Curing’ Malassezia, Lol!
Yet i believe some seeds may have already found their way in his heart
and eventually his mind … you never know!… Life uses or creates Circumstances
to Guide us all to the water of Knowledge whether we choose to drink
or resist and stay inert until the inevitable strikes hard…

I see from the way you have been documenting your findings
* An Intelligent approach (most people lodge into anything –myself too initially)
* Research ( eventually we all resort to that one way or another)
* Methodical experimentation and watchfulness (again not all people do so)
* Close watch on your Body
* And an Openness to Solutions (my intuitive judgement from all you are relating)

These alone make me believe they may be the ‘Knock’ on your Father’s Door
and may have already be having some influence on him,
even if not quite detectable on his ways yet as perhaps
some of the Problems he is facing might be that,
as a Professional he feels reluctant to differ from the Traditional medical approach,
                                 … …. …. 

( Here i just broke my resolve not to get entangled in the ‘Dermatologist’s’ issue
feeling myself very frustrated and biased by my and including my husband’s experiences,
but to my surprise i have approached it more from the Father–Daughter angle
and feel more kindly and sympathetic to both your sides
as i too have two daughters of my own and i know that even where there are
disagreements there are always some influences and considerations on both sides)

( Reader )

                            … … …

I will take your suggestion and work on my dad a bit.
                           … … …
 
It’s easier for him to just go with the American Academy of Dermatology recommendations
                            … …
Yes, Understandably…

———————————————-

(Reader)

What a lovely email to receive. 

I’m very happy to have facilitated some peace in your life. 

If it helps, I have a little insight as to why these doctors behave in such a way. 

My father, and many, many doctors I have encountered, have very little empathy. 

It’s counterintuitive to me, because one would think that a doctor’s goal

is to help someone feel better. 

It took a lot of observation and investigating and massive disappointment for me

to figure out that this is rarely the case. 

Doctors tend more to be of the engineer type mindset, where they’re really out simply to use

deductive reasoning to solve a problem.  Considering the mastery of math and science involved

in the study of medicine, it’s really not that surprising. 

The problem arises when it’s something that doesn’t fit neatly into one of their categories. 

             And, he admits that some patients do fall through the cracks due to the           

 ‘don’t look for zebras when there’s a horse right in front of you’ credo

Malassezia and Doctors MD  

                                        (click on photo to enlarge)

The simplest explanation is the right one, in their minds. 

Do we have some weird infestation, allergic reaction, something or are we delusional? 

It’s easier to deem us delusional and move on, probably because

the anxiety we present with puts us in a neat little box of DP. 

Then, they feel satisfied that the solved the problem, and their egos remain intact.

    Malassezia- the end Result MD

Another theory I have is that if they ever did have the capacity for empathy,
it may have waned over the years due to a self-protective mechanism to insulate them
from their patients’ problems.  I know my dad has had to construct a wall around himself
when it came to patients he deemed needy, to prevent himself from getting sucked in. 
He cares about his patients, but he won’t take on any of their pain. 
It’s infuriating to say the least, in cases like ours. I truly feel like they misrepresent themselves
—but perhaps we overestimated the practice of medicine.

           (I totally agree with the Reader’s assessments, many of which 
               i had arrived at myself and now with additional ones
                   to complete an accurate picture – as i see it.)


The only luck I’ve had with any doctors are holistic practitioners

—integrative medical doctors, acupuncturists, chiropractors—
they have never made me feel crazy, even if they didn’t know what it was. 
But, generally they have gotten it right away. 
What I now understand to be true about general medicine,  is that medical doctors
are taught to make a diagnosis based on specific symptoms, and prescribe medication. 
They’re generally not creative thinkers, and they’re very impatient. 
So, something like malassezia is unfathomable to them.

                                                         *

I feel vindicated since figuring it out with the help of wonderful doctors and my own research,
and I’m proud of the knowledge I’ve accumulated along the way. 
And, I hope that you feel proud of yourself and your service to others. 
You’ve done an amazing job figuring this all out and meticulously documenting everything.
I hope that despite these horrible experiences with doctors
that you can recognize it as their weakness, rigidity and stupidity,
and just continue your work preventing others from having to go down that path.   
And, then I hope you can gather up all of this frustration,
let it flow and let it go (that’s my motto with my kids). 
It took me a long time—( …) years now, and I’m not totally there yet, but I’m close. 
                                                      ……….. 
                         Wishing you a happy, healthy day!! 🙂

                                       ~

                        A very Brave Reader Indeed

                 and i feel Lucky and Indebted 

          for such detailed, highly Informative Feedback

   Thanks RC

 

          ========================================================

Malassezia Readers Contributions

Readers have been asking Frequently about the Comments Section 

                I have Deliberately Closed it in All my Blogs

                  Due to the Volume of Extra work Required.

                    I am Therefore Tentatively Considering

                       A ‘Readers Contributions’ Category

                                         Publishing

                                    –Anonymously

                           (after obtaining permission)

               Selective Helpful and Informative Sections

                       from Qualifying Readers’ emails

                         on a ‘Now and Then’ basis

   ========================================================

                         ENTRY LINKS 1-120 *   

                                         *

                         *  Malassezia Blogs  *

                                       Malassezia Blog WP

                            Deals with history of Treatments 

                               Outcomes and Experiences 

                             from Beginning to Recent times  

                                  –>  * Malassezia Blog *  

                                                       *

                                           Malassezia Daily WP.

                    Confirming and/or Updating past Topics 

                                                  Adding

                       Recent Developments and Progress

                             New Discoveries and Photos 

                                                    And 

                  Addressing Readers’ Questions / Keywords

              Please Note:

                       I am NOT Qualified  To Make a Diagnosis

                             Nor Provide Personal Advice

                                All References are Based

                   On my Own Unfolding Personal Experiences

                                 –>  * Malassezia Daily *

   *              

        ========================================================

  DC3 MD              

 
Comments Off on Malassezia~Readers’Contributions-Horse or Zebra?

Posted by on 24/06/2014 in A-ALL ENTRIES, H-MALASSEZIA YEAST, Readers Contributions

 

Tags: ,

Malassezia Readers Contributions – Sea and C

                         * Malassezia ~ Seawater and C * 

Sea Water and Malassezia

                   * Malassezia ~ Readers’ Contributions *

                                                      *                  

ID: JN104-51006PKF 

Hi Sonata.   I wanted to post some of my treatment trials and offer support on your blog.

 I’m not sure if you take posted comments or not

I just wanted to pass along that My VITAMIN C* and sea* salt treatment is helping so much.

The 3 stubborn sores left over from about a thousand Are finally healing.

And My finger nails are turning back to WHITE WHITE.  Whiter than I ever seen them.

Skin texture in much better.  Oh I got the neutragena* face wash you recommended.  I love it.  

 Sending Happy Healthy Wishes Your Way!!!!!! 

Thank you so much!

 

                           *

                I am so very pleased to hear!

                                       ~

*1) From communications with the Lucky Reader living by the Sea

            i believe by ‘Sea Salt’ is meant ‘Sea Water’.

          I doubt if (Sea) Salt itself, isolated from the other     

            Sea minerals contained  in the Sea Water,

                    could produce the white nails.

                                       ~

    I have been experiencing the same result myself 

           due to Regular Seawater use for its

Malassezia Preventative and Fast Healing Properties

 And the Additional Benefits to Nails, Hair and Bones.

                                      ~

*2) Vitamin C, especially combined with Vitamin E

           taken Internally helps heal wounds.

                                      ~

*3) Neutrogena i rarely use nowadays, as a Malassezia treatment

   a)  due to its Salicylic acid which is a Blood Thinner

               and can cause Bruises and /or Bleeding

        where there are tendencies or other medications involved

        especially if used extensively or left on for a long time 

            (though should be ok for a quick facial wash

             but not as an effective Malassezia treatment.)

                                                        ~

        Where i found Neutrogena most useful a long time back

             was its ability to Remove Dead, Sticky, Lizard Skin

           -caused by Malassezia allowed to settle and dry-

               but this method required leaving it on the skin

         much longer than the recommended instructions

                             for a quick facial wash

 and where the Blood Thinning property of SA

    had to be taken into consideration.

                                                        ~

      b) because i have not fully established beyond any doubt

           if any of its other Ingredients attract Malassezia Back

                                                  ~

      c) because Washing and Scrabbing Thoroughly any area

         -where burning, itching, crawling, irritation or activity is felt-

                        Immediately with Warm Water                      

                  using a rough Face Cloth or Cotton wad

        Removes the Yeast Before settling and drying on the skin

                     (becoming much harder to remove)

                   thus Not  Requiring the Neutrogena use

                                              and

                       d)  because using a combination of

                          Seawater and Acidophilus Mix

               Offering Many Additional Skin Benefits Each,

                  i rarely find any use for Neutrogena anymore.

           I know though from Feedback that numerous Rearers

                        both Male or Female seem to love it.

                                                ~

          Personal Experience and Time can be good Indicators.

 

          ========================================================

Malassezia Readers Contributions

  Readers have been asking Frequently

                           about the Comments Section. 

                I have Deliberately Closed it in All my Blogs

                  Due to the Volume of Extra work Required.

                    I am Therefore Tentatively Considering

                       A ‘Readers Contributions’ Category

                                         Publishing

                                    –Anonymously

                           (after obtaining permission)

               Selective Helpful and Informative Sections

                       from Qualifying Readers’ emails

                         on a ‘Now and Then’ basis

 

   ========================================================

                         ENTRY LINKS 1-120 *   

   ========================================================

                                         *

                         *  Malassezia Blogs  *

                                       Malassezia Blog WP

                            Deals with history of Treatments 

                               Outcomes and Experiences 

                             from Beginning to Recent times  

                                  –>  * Malassezia Blog *  

                                                       *

                                           Malassezia Daily WP.

                    Confirming and/or Updating past Topics 

                                                  Adding

                       Recent Developments and Progress

                             New Discoveries and Photos 

                                                    And 

                  Addressing Readers’ Questions / Keywords

              Please Note:

                       I am NOT Qualified  To Make a Diagnosis

                             Nor Provide Personal Advice

                                All References are Based

                   On my Own Unfolding Personal Experiences

                                 –>  * Malassezia Daily *

   *              

        ========================================================

  DC3 MD              

 
Comments Off on Malassezia Readers Contributions – Sea and C

Posted by on 22/06/2014 in A-ALL ENTRIES, Readers Contributions

 

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